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ABOUT 

  by Rare Black Lives matter Too 

"Our Lives Matter"

a Rare Advocacy Movement Initiative

Rare Black Lives Matter Too consists of rare disease community-based, academic-based, advocacy-based and industry-based advocacy professionals and allies of various ethnicities, genders, sexual orientations, religious beliefs, racial and socioeconomic backgrounds. Specializing in rare disease, disability and medically complex community dynamics, Rare Black Lives Matter Too team facilitators collectively have organized a call to action for the nonprofit advocacy sector, the pharmaceutical and biotechnology sector, and the clinical medical healthcare sector. As a unit, Rare Black Lives Matter Too has partnered with New Love Ventures to develop a collection of DEI (diversity, equity, inclusion) solutions, offered through the "Our Lives Matter" DEI Initiative. 

In order to overcome the fear of facing such a difficult topic, you have to be willing to unLearn deep rooted biases. You have to be open to being comfortable with your discomfort, regardless of your racial classification. You have to chose to be responsible. Only then, will you be ready to take authentic action to embrace the lessons, knowledge and understanding that the "Our Lives Matter" diversity, equity and inclusion programs offer.

- a rare disease person of color

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RAM is a rare disease community leadership network founded on the premise of developing mutually beneficial collaborations between rare disease community leaders, influencers, experts and other rare disease stakeholders, with the goal of developing insightful publications dubbed RAM Collaborations.

RAM removes toxic competition amongst community rare disease leaders, influencers and experts and replaces it with support, camaraderie and mentorship as patient advocacy professional navigate the rare disease industry, regardless of which disease specific community one originally belongs to.  The RAM network encourages unity, collaboration and support amongst the membership, embracing the concept, "a win for one is a win for us all".   ​

New Love Ventures

New Love Ventures has partnered with RAM's Rare Black Lives Matter Too Collaboration to provide the administrative and legal support for the collective programs of the "Our Lives Matter" DEI initiative. 

New Love Ventures, the creator of the New Love Human Culture trademark, is a novel Venture Philanthropy company determined to support initiatives that serve humanitarian efforts, in addition to supporting meaningful distribution of and access to resources, opportunity and the pursuit of happiness for humans of all varieties.​​